Conversations About Ethics

Before Birth and Throughout Life: Ethical Considerations in Genomic Sequencing

Amy L. McGuire, J.D., Ph.D.

Rapidly evolving knowledge on the sequencing of the human genome has led to visions of a time when each person's genome will be sequenced, guiding health and medical decisions over a lifetime. But challenges persist. Many health practitioners feel ill equipped to address genomic medicine with patients. Clinical researchers, too, are wrestling with  novel medical, legal and ethical questions presented by this new frontier. Adding to the challenge, genetic information involves not just individual patients but entire families, and considering the needs of all is a challenge for our medical system. This important "Conversations About Ethics" gives physicians and clinical researchers an overview of the current landscape in genomic medicine and a framework for incorporating new information.

Learning Objectives

Participants will be able to:

  1. Educate and prepare the health community to knowlegeably and ethically discuss and manage genomic information with patients.
  2. Evaluate policies and practices on genomic research, at the institutional level and beyond, with an eye toward advancing research while protecting research participants’ rights.
  3. Address the psychosocial challenges of genomic conditions for patients and their families using resources such as the Family System Genetic Illness (FSGI) model.

Continuing Education Information for both the workshop and evening lecture

CME: The UT Health Science Center San Antonio School of Medicine is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.
 
The UT Health Science Center San Antonio School of Medicine designates this live activity for a maximum of 5.50 AMA PRA Category 1 Credit(s).™ Physicians should claim only the credit commensurate with the extent of their participation in the activity.
 
†Each presentation meets the Texas Medical Board criteria for 1 hour formal continuing medical education involving the study of medical ethics and/or professional responsibility.
 
CNE: University of Texas Health Science Center At San Antonio is an approved provider of continuing nursing education by the Texas Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.
 
The workshop activity provides 5.0 contact hours. The keynote presentation provides 1.16 contact hours.
 
CEU: The Ecumenical Center for Religion and Health is an approved provider of continuing education by the State of Texas for the following: LPC, LMFT, LSW, LCSW and LMSW.
 
The workshop provides up to 5.0 ethics continuing education units. The evening lecture provides up to 1.16 ethics continuing education credits.

About Our Speaker

Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Her research explores the legal and ethical issues in genomics with a particular focus on genomic research ethics and the ethical and policy issues related to the clinical integration of genomics. She is a member of the National Advisory Council for Human Genome Research at the National Institutes of Health and is an alumnus of the Greenwall Faculty Scholars Program in Bioethics. She received her B.A. from the University of Pennsylvania, summa cum laude, her J.D. from the University of Houston Law Center, summa cum laude, and her Ph.D., with distinction, from the Institute for Medical Humanities at the University of Texas Medical Branch.

Locations

This lecture will be held in San Antonio and presented via video-teleconferencing at: 

RAHC Auditorium 1.100 (Main), 2102 Treasure Hill Blvd., Harlingen

Laredo Extension Campus, Room 2.200, 1937 Bustamante Street, Laredo, Texas

Beginning of LifeMiddle of LifeEnd of Life


Resource List

This resource list brings together websites, videos, audio recordings, books, and articles to supplement the workshop and lecture.

By Our Speaker

Dipping Your Toe (Introductory Information)

Wading Waist High (Intermediate Resources)

Taking a Deep Dive (Advanced Materials)

Access to Materials

Freely available Online
Available through the San Antonio Public Library
For information about how to obtain a San Antonio Public Library card, click here: http://ask.mysapl.org/a.php?qid=119134
Available through the Briscoe Library at the UTHSCSA Faculty
Faculty, students, and staff may access these materials remotely using their Health Science Center log-in. Non-affiliated individuals and members of the general public may access these materials in-person by visiting the library and registering for guest access. Off-site access is not available for non-affiliated individuals and members of the general public due to licensing restrictions.